September 28, 2010

Happy Birthday Craig! You would have been 49 today! Time has gone by so fast, but haven't stopped missing you for one second.....

On September 20th, I was in Phoenix at the AZHI for the testing to see if I did have blockage of my veins. After all the tests were done, I met with Dr. D. and Teresa, and sure enough, I did have blockage in my right jugular, and an abnomality in my left jugular and my agzyoids vein. These were the words I was hoping that I would hear! To go and find out that I didn't would have been one of the biggest let downs I would have ever had. But it was true! I am diagnosed with MS, and my veins are blocked!! Dr. D. asked if I could be there the next morning around 8 a.m. to start my procedure! I was so so ready!! Tuesday morning I woke up, didn't sleep too much that night, and was there earlier than my appointment, around 9:00 Tuesday September 21st, I was on my way! After getting the IV in, I was wheeled into the operating room! Amazing I was nervous at all!! I was awake thru the whole procedure, wish I could have seen the screens a little bit better, but I did see that wire going thru my veins!! My right jugular was blocked good, I felt it and heard it! Wasn't really what I would call painful, just a very weid feeling. Next he went to my left juglar, and I could feel it when he went in there, but didn't have the sounds with it. Then he went to my agzyoid vein, and I really felt that. Must have been something in there too to move out!! After that, he was all done! I went back to recovery, after about 2 hours they took the IV out of my left arm, and said I could go back to the motel. Set up an appointment for 7:20 the next morning to meet and discuss what he had found. That first night, I when I layed down, I had a total rush of heat that went all the way down to my toes. Like I could feel the blood rushing to my feet! That was a bit strange! That Wednesday morning, all I could think about was getting home to my own house! Drove the whole way. Which was way too much for the day after the procedure. The first night home, I still had that rushing buring thru my body as the blood flowed. Thursday morning, I gave myself a panic attack, which made my heart race, scared me!! Called and Teresa called me back and told me this was just my normal blood flow, and my body would get accustomed to in a day or too more! She was right! Friday was the last time I have felt this! Must mean my blood is flowing!! Spent the weekend doing as little as possible, I am still not what I would say a whole lot better, but have to know that I didn't get this way overnight, and it is going to be one day at a time and pray that I will see some little things each and every day! Its been one week today since the procedure, and I still have to make myself get up and just do it!! Mowed my lawn today, and ran the water. Fall is almost here, the leaves are falling out of the trees, and the nights are cool. Life will be good!

September 13, 2010

One week from today, I will be in Phoenix to undergo testing to see if my veins are blocked or narrowed. I am anxious and scared at the same time if that is possible! I had the most awsome weekend, spending times and riding bikes and playing outside with my grandson's! They are so amazing!! Gives me the push to hurry up and find out what is going on in my body!!!

I am axiously awaiting word from a friend I have met on here from Canada, she is having the testing done today! I pray that you find the healing! We all want unplugged!!!

Another beautiful fall day, as I so ready for my trip to Phoenix!!

September 5, 2010

Still counting down! 15 days till I have my scan for CCSVI! I kept my self very busy the last two days to try to keep my mind occupied. I did a lot of painting over the last two days! Will have to go back and do touch ups, but was too hot outside today to do it all! Tomorrow is Labor Day, and I am planning on going to see my grandkids. I sooo miss them, not getting to see them several time a week! Want to spend as much time as I can with them over the next two weeks, and want them to know that I am going to most likely have surgery on the 21st, and that will make grandma feel so much better. I just want all to know that it has been a very difficult time these past 11 years, and I am praying that my fatigue and all the other symptoms I have with the diagnoses of MS, will change, and that it will be a vascular issue, the blood not flowing correctly thru my jugular veins.

September 3, 2010

Today was a good day. Went to the Pavillion and picked up the disk of my MRI I had yesterday.

Have had a very quiet evening to reflect and relax and just imagine how things might change for me by the end of September 2010.

September 2, 2010

Today I went and had my MRI for AZHI. Faxed the records release to local dr. to send to Arizona. Today was a very long day, with lots and lots of anticipation. Spoke with my friend who will be down there the same time I will, and helped to relieve some of the anxiety! It is going to happen!!

September 1, 2010

Today, I received another packet from AZHI, got it all filled out and faxed it back to them. By noon today I had my appointment!! SEPTEMBER 20, 2010!!

I was so happy, I didn't know whether to jump around or cry! So I did both! My countdown is on. In less than 20 days I will know if I have restricted veins and need angioplasty, or if I will just have to live with everything as is, and pray for no further disability.

Motel reservations are made for 5 nights in Phoenix! I won't lie, I am scared. But to have possitive treatment will be worth everything!

Sounding Promising!

I just got off the phone with MEDICARE... this is what they told me.

For outpatient procedures and testing they will cover 80% if it is medically necessary.

No referrals are needed and no pre-authorizations are needed.

And they will cover all angioplasty procedures and testing.

Medicare: 800-633-4227